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Make Your Own!
Jason Carr's ALS Stampede to ALaSka
Started by: Danielle Carr
Jason Carr's ALS Stampede to ALaSka
Jason was diagnosed with an untreatable and fatal disease two years ago. ALS (Lou Gehrig's disease) has slowly robbed him of his muscles, ability to walk, lift his arms, and lead the life he envisioned. Along with Jason, our family has made the collective decision to embrace life and the days that remain.
I recently left my career to become his full-time caregiver and focus on being the parent that our two young sons need while they navigate their dad's disease.
We look forward to building memories together while we can.
The other night while talking to Jason, I said to him that it had just hit me that we would all be home this summer when school let out and wouldn't it be incredible to drive to Alaska and take in the scenery while you can still breath independently and have the core and neck strength to look out the window? He agreed and even insisted. I worried that it was just a crazy dream to embark on this journey.
I was even more surprised that when I mentioned it to our family and friends, they seemed to agree that we should pursue it.
We would love some help to make our way to Alaska and back home again. There are many ways this can be achieved. Cash to help with expenses, gas cards, gift certificates to restaurants, hotel points... We also encourage people to join us along the way.
Wishlist
113 Supporters
- Kasey Worrell Hatzung6 years ago We hope you have an awesome trip and time together as a family! Hi to Caleb from Ethan ; ) Love, The Hatzungs
- Anonymous6 years ago
- aaron holzbuaer6 years ago "For these and all thy gifts of love, we give you thanks and prays. Look down our father from above and bless us all our days"
- Karen Chenvert7 years ago
- Lee Z7 years ago
- Corita7 years ago Best wishes. Ler me know how else I can help.....
- Anonymous7 years ago
- Anonymous7 years ago
- Kimberly Lohan7 years ago Have a wonderful trip~
- Heidi Williams7 years ago I hope you have an awesome trip!
- Show 103 more supporters
Latest Update
Friends, please refer to all future updates on our caringbridge site, https://www.caringbridge.org/visit/jasoncarr
Posted by Danielle
August 30 at 2:51am
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We made it and clocked nearly 7,400 miles on our odometer! It would have been additional 2,500 had we not elected the four day car ferry trek through Alaska's Inside Passage. This was truly an epic journey and one that will always remain in our hearts. Thank you all for making this life long wish for Jason a possibility. The drive was filled with scenic eye candy, polite wild life that respected our space and let us admire them, laughter, and unexpected delights. My intention is to reach out to each of you individually. Time is precious and we appreciate that you all took some moments from your lives to be a part of our adventure.
Posted by Danielle
July 25 at 9:41am
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Wow! We are so blown away by everyone's generosity and cannot wait to embark on this adventure. It is so nice to have this dream come together for Jason, the boys, and me. We cannot thank everyone enough. Please know I wish I could thank each of you personally. Hugs to you all!
Posted by Danielle
April 17 at 9:09am
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More progress and good news! We have confirmed our house and pet sitter! It's a relief to know that all will be in good capable hands.
Posted by Danielle
March 24 at 5:47am
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I want to extend a sincere thank you to everyone who has made it possible for us to reach Anchorage!! This is really happening! Even though we haven't fully met our goal, we know we can get there on the pace we intended. Today, I worked with a travel agent to book a handicap friendly adventure into Denali! We'll be able to see, Mt. McKinley and the wild life of Denali. Our family is looking forward to this and I can't express enough how nice it is to have something like this to look forward too! Please know, that I would like to reach out to each of you individually and thank each of you! We are so touched.
Posted by Danielle
March 23 at 8:45pm
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