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Make Your Own!
A hardship fund forOur Daughter, Kaylee Marie Huff
Kaylee Huff's Throat Surgery
Started by: Carleen j huff
Kaylee Huff's Throat Surgery
This is our Dear Sweet Angel, Kaylee Marie. She was born three months premature. Kaylee has proven to be a fighter and that life is a gift she cherishes. This past August, Kaylee started having difficulty using her Passey Muir valve. She uses this valve to communicate with us. We took Kaylee to her ENT, who performed a scope on her and found that right above her stoma site , her throat was beginning to collapse. Kaylee's airway opening is the size of the end of an pencil eraser. By the end of November, Kaylee will only be able to breath through her trach and unable to talk due to full collapse. She must go to Cincinnati, Ohio to have reconstruction throat surgery done. This is coming at a very bad time for our family!! My husband is being laid off since the plant is shutting down and he is looking for another job. We must take her twice to Cincinnati. First is for the pre-surgery testing, then we must go down a second time for her surgery. They will be taking a bone from Kaylee's rib and placing it into her throat to reconstruct her airway and reopen it. Then Kaylee will be put into a 10 day coma to heal since this is such a painful procedure. Then three weeks of healing time before she is released. We have no money for the u haul we will need to haul all of her medial equipment in when we take her down and back (her medical supplies, her vent, her vest machine, her 02 tanks, her food and feeding supplies, diapers, etc.). Ronald McDonald House is on a first come first Serve basis for those who ask. We have asked family and they are unable to help us at this time. We also need Money for lodging and gas. We are in dire need of help since our first trip is November 12, 2016. Please help us. She is our angel. Al and Carleen huff, Omaha NE
Latest Update
GOD IS AWESOME!! While my oldest daughter,Ashley, Was at her job at McDonald's, Man came up to her and gave her a pick three power ball ticket..He Told Ashley to use it for Kaylee..It had the 3 straight winning numbers, 726., Worth $600…. We are in tears.. all we k now is his first name.He wants no reconition ... God, bless this angle and let him know, we are forever greatful.. For the non believers,. .. pictures video will come soon..God bless
Posted by Carleen j
October 31 at 11:09am
Nothing happening has us lost for words. We have raised awareness, passed out flyers, but hit a big stand still..WE NEED HELP. Please, put in church bulletin, work place, your page.. PLEASE
Posted by Carleen j
October 31 at 8:59am
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Tonya Tortilla — 7 years ago
Carleen your family can stay with me ! I live in Cincinnati
Kaylee is home from the hospital.. Needed medication change to control her seizures.will start to get her garage sale ready this week .Past out flyers at her school s trick or treat night.. .God Bless
Posted by Carleen j
October 23 at 6:00am
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Yesterday, Kaylee had a two hour seizure.Her Brain is unable to accept her body is getting ready to turn into a young lady. Her hormonal imbalance was too much for her brain to accept, and her body went into overload.5 hours at the ER, and plenty of medication, She went home with Mom and dad..
Posted by Carleen j
October 20 at 7:34am
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thank you so very much to those who have donated to kaylee's fund. This is very hard for us do as parents.Asking for a hand out always meant you were weak.. Now in our adult year, we understand the meaning of it takes a community to raise a child.. God bless
Posted by Carleen j
October 19 at 6:48am
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8 Supporters
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- Johnny Stimmel7 years ago Praying that you feel God's presence through this trial.
- Michael Dunn7 years ago wish I could do more
- kenneth johnson7 years ago Best wishes. I hope it helps.
- Deorla Chandler Chumley7 years ago Best wishes. Prayers for all of you. Sorry you have to go through this. God be with you!
- Wanda Owens7 years ago Prayers for Kaylee!
- Anonymous7 years ago
- Anonymous7 years ago
- Anonymous7 years ago
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