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Help for Manalang family
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A hardship fund forJayson/Alison & the 3 children

$1,925 given of $8,000 goal

Help for Manalang family

Started by: Barbara Kelley

152 shares

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Update 10/21/2016: Madyson had the 2nd heart surgery at the end of September in Atlanta. THANK YOU SO MUCH for your support and prayers!!!! The surgery went great and Madyson arrived home from Atlanta on a Monday. We were so excited but we then got news of Hurricane Matthew about to come through our area. We waited the storm out, had no damage but lost power. Since Madyson needs to be in a temperature-controlled house and her mommy needs to have lights to monitor her through the night, the Manalangs had to return to Atlanta on that Saturday evening until power was restored in their house. Madyson's father missed almost three weeks of work without pay due to the surgery and hurricane. I am therefore asking if you would please re-post this once again to your pages in case there is someone who would like to donate to this PlumFund and help them out financially. Your continued prayers and support through this have been a tremendous blessing to us. Thank you!

Update 09/17/2016: Madyson is now 5 months old and is scheduled for a 2nd heart surgery this month. Please share this again on your walls as the family would be most appreciative of prayers and any financial gift someone could contribute on the Plumfund page. God bless and thank you so much! If you have not read about Madyson from the start.... below is her story. Thank you.

Hello. My name is Madyson Manalang and I was born in April 2016 with Tricuspid Atresia. I had heart surgery on May 10th and I am finally home from the hospital and doing well. My Grammy is helping me write this and before she gets too far ahead of herself, let me back up a little. ;).

We live in the Savannah area but I had to be delivered in Atlanta because I needed specialized care that the Savannah area does not offer. I got to go home to Savannah after about 6 days post-delivery. Yay! However, one month later I had to be transported by ambulance from Savannah to Atlanta because I needed emergency heart surgery. Mommy and daddy came quickly after but by the time they arrived, the surgeon had already started my surgery. Mommy and daddy stayed with me in Atlanta for 2 weeks after the surgery while I recuperated and so that they could receive training on how to care for me when I got home.

As I said, I am finally home now but still on a feeding tube and several medications, and still having to go to several appointments with different doctors and medical people to make sure everything is going smoothly. Mommy said the doctor plans on doing a catheterization in August to see what the next step is so we will once again be traveling back to Atlanta. She said the doctor told them that once the catheterization is complete he may be recommending two more surgeries over the next three years. It seems that it will be a long road but we are standing strong and trusting God. Speaking of standing strong, my Grammy gave me a nickname; “Kia Kaha” which means Forever Strong. I love it!

I told you my story to help you understand why I wanted Grammy to start this page. It wasn’t for you to feel sorry for me or my family but to let you know that mommy and daddy are the best parents that I could ever ask for. They have sacrificed a lot to get me the care I needed, and they continue to sacrifice for me. I write this to let you know that mommy and daddy sure could use help paying their bills. I do have medical insurance but I heard daddy say that since he was just shy of being at his job for one year when all of this started, he has been off work all these weeks without pay for the most part; and we are a one income family. His employer has been working with him to be off but still, not much money coming his way from there. Daddy even sold his car recently to help pay bills.

So, I write this letter asking if you would make a contribution to help lighten the financial load that mommy and daddy have right now. Would you? I would appreciate it very much, and I know mommy, daddy, my brother and sister would too.

Thank you so much. Have a great day!

Warmly,

Kia Kaha/Madyson

P.S. Mommy has started TWO groups that you can find on Facebook. One is called Cardiac Stitches which collects knit & crocheted items for hospitalized cardiac children. Items include in any size, style or theme: blankets, hats, socks, stuffed animals. The other one is called Tricuspid Atresia Savannah/Atlanta Support Group. It’s a group to share your journey and build friendship with families who know exactly what you are going through or will be going through with the diagnosis of Tricuspid Atresia.

Latest Update

As I said in my last update just a few minutes ago... Here is Madyson the day we brought her home from the 2nd surgery. She is one smiling baby girl!

Posted by Barbara

October 14 at 5:09pm

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Redge Whaley — 5 years ago

She is just so beautiful! Her beautiful little smile has stolen my heart! Continued prayers of even greater miracles to come!

Hello everyone! Thanks so much for your prayers and support. Madyson had the second heart surgery on 09/29 and this is a picture of her that same day. It was VERY hard seeing her like this BUT GOD! She did extremely well and was moved from the CICU unit to the step down unit in less than 24 hours and we got to bring her home on the 5th day! Yup, the 5th day. The surgeon said the surgery went very well. Madyson is such a sweet girl and her smile was back on her face just a few short days after the surgery. I will post another picture of the day we brought her home. God bless and thanks again for all of your support. If you know anyone else who would like to contribute financially, it would be greatly appreciated. Grammy

Posted by Barbara

October 14 at 5:08pm

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Update on Mady. She is now 5 months old and is scheduled for a 2nd heart surgery this month. Please share the PlumFund link again on your FB walls as we would be most appreciative of prayers and any financial gift someone could contribute through that link. For those of you who have already given, thank you once again for that generous gift and for your continued prayers. You are SO APPRECIATED! God bless! Grammy (Barbara) P.S. Sorry but I don't have an updated picture of her on my computer right now....

Posted by Barbara

September 9 at 4:07pm

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What is the Bi-directional Glenn Operation? This usually is performed about six months after the Norwood (which Madyson had when she was 1 month old) to divert half of the blood to the lungs when circulation through the lungs no longer needs as much pressure from the ventricle. The shunt to the pulmonary arteries is disconnected and the right pulmonary artery is connected directly to the superior vena cava, the vein that brings deoxygenated blood from the upper part of the body to the heart. This sends half of the deoxygenated blood directly to the lungs without going through the ventricle.

Posted by Barbara

August 25 at 3:55pm

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Update on Madyson Manalang: So at 2am she decided to wiggle herself out of her warm swaddling blanket, remove her glove and pull out the feeding tube! She managed to do all of that in her sleep! She is one smart cookie! Also, she had a cardiologist appointment today as well. The doctor said everything looks great! However, they say within 1 to 1.5 months she will need the Glenn surgery (which will need to be done in Atlanta). What is the Glenn surgery? I will post another update with that in it. Your continued prayers and sharing of this Plumfund page so others can pray, share and financially support if possible is greatly appreciated. God bless. Here is today's picture of Mady without the tube. :)

Posted by Barbara

August 25 at 3:54pm

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Hello everyone! Sorry for the delay in updating you regarding the catheterization Madyson recently had. Everything went well with the test and the doctor said that Madyson's heart and the shunt look good. PRAISE THE LORD! They will recheck her sometime in September or October. In the meantime, your continued support through prayers and sharing/re-posting her Plumfund page is greatly appreciated. I will try to keep you up-to-date with her. She is growing, gaining weight and is really a beautiful little girl. God bless all of you!

Posted by Barbara

August 17 at 4:48pm

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Redge Whaley — 5 years ago

Amen! God is good! Rejoicing with you in the good news!

Hello everyone! Please continue to pray for Madyson. She is scheduled for a heart catheterization this coming week in Atlanta to see how she is doing. God is in the miracle business! Also, would you please continue to post/share the plumfund page about Mady with others? Prayers, sharing and financial support are all GREATLY appreciated. I will try to post another update in the next couple of weeks with another picture too (I think this one may have been taken about one month ago). Madyson is a beauty!!! God Bless!

Posted by Barbara

August 5 at 5:25pm

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Redge Whaley — 5 years ago

Anxiously awaiting a hallelujah report on Madyson!♡♡♡♡

I thought you might enjoy seeing the whole family in their matching t-shirts supporting Madyson. Thanks for everything! God Bless!

Posted by Barbara

July 10 at 9:41pm

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Redge Whaley — 5 years ago

Awesome beautiful family! God blessings be poured upon you all! Great expectations of a miracle!

Hello everyone. This is Grammy giving you an update on my Kia Kaha (Madyson). She is doing well and the doctor has reduced some of her medications. As you can see, she is still on a feeding tube but they are working on being able to take that out. Mady has been having reflux and will be having a swallow test this coming week; and is still scheduled for the catheterization in August. We are expecting a miracle for Madyson and ask that you continue to stand with us on God's Word for healing. We greatly appreciate your support. God Bless! Grammy (aka Barbara)

Posted by Barbara

July 1 at 6:29pm

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32 Supporters

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  • Darlene Barnum5 years ago You are in my thoughts and prayers. Love-
  • Yun Susan5 years ago Best wishes.
  • michael h mallin5 years ago Praying for all of you for healing, and for bringing you closer to Jesus through this challenging time.
  • Holly Copeland5 years ago
  • Carolyn J. Walters5 years ago Best wishes.
  • Anonymous5 years ago
  • Maron Rinehart5 years ago
  • Anonymous5 years ago
  • Robertino Tanjuakio5 years ago Best wishes.
  • Donna M Wester5 years ago God bless.
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